El caso Avelino: posiblemente el mejor paciente del mundo con diabetes tipo 2

Juan RevengaActividad física, Alimentación saludable, Diabetes, Estilos de vida

Tiene 77 años, le diagnosticaron diabetes tipo 2 con 33, llegó a usar 60 unidades de insulina/día, y hace más de 10 años dejó de usarla. Hoy se encuentra mejor que nunca; se llama Avelino y esta es su historia

[NOTA BENE: ESTE POST SE PUBLICÓ DE FORMA ORIGINAL EL 1 DE SEPTIEMBRE DE 2020 EN LA WEB DE UN CLIENTE (PATIA) QUE, EN SU DÍA, RETIRÓ LOS CONTENIDOS DE SU WEB. SE REPRODUCE CON SU AUTORIZACIÓN]

Maldita la gana que he tenido nunca de empezar un artículo con un “clickbait”. Y este de hoy, aunque lo parece, no va a ser el primero de mi carrera. Eso sí, átate los machos porque vas a conocer casi de primera mano un caso alucinante de mejora, quién sabe si de curación, de la diabetes tipo 2.

Empiezo por el principio y te pongo en antecedentes. En pleno confinamiento recibí un correo a través del formulario de contacto de mi blog en el que un tal Avelino, tras haber accedido a mi blog y contenidos, me solicitaba una “consulta”: tenía diabetes tipo 2. Tras ponerme en contacto con él de forma más estrecha mediante el móvil, me informa de su caso: hace más de treinta años pesaba 78 kg -una cifra más que respetable si tenemos en cuenta que Avelino mide 1,55m, lo que arroja un IMC de 32,5- y que hoy pesa 55kg (IMC = 24,1) y le diagnosticaron la enfermedad. Tras contar desde el inicio con un tratamiento farmacológico a base de antidiabéticos orales, a la vuelta de dos meses la diabetes seguía estando totalmente descontrolada y hubo de incorporar la insulinoterapia a dicho tratamiento. Llegó a emplear 60 unidades/día de ella, además de 12 pastillas para tratar otras comorbilidades asociadas a su caso.

Muestra del diario de Avelino

Así que como comprenderás, vista su evolución y conociendo el entusiasmo que me transmitió Avelino, no pude por menos que reconducir la relación y ser yo el que le pedía “consulta” a él. Quería aprender y, es más, quería dar a conocer su caso a través de este medio. Y créeme que te sorprenderás del grado de compromiso de Avelino con su estado de salud, interviniendo para ello en sus estilos de vida e iniciando un blog cuyos datos son sencillamente espectaculares.

Y dicho y hecho, convenimos por teléfono una videoconferencia (tan en boga a raíz de los últimos acontecimientos) y preparé una batería de 23 preguntas con las que sacar todo el jugo posible a este ejemplo de entereza y compromiso con su diabetes. A continuación, tienes toda la información que he preparado fruto de aquella entrevista de más de tres cuartos de hora de principios de junio de 2020.

El programa “El paciente activo” tuvo “la culpa”

Avelino reconoce que el programa conocido como “El paciente activo” [el enlace ha desaparecido a día de hoy] del Departamento de Salud del Gobierno Vasco (Osakidetza) tuvo mucho que ver en su implicación y motivación para obrar este milagro: perder mas de un 25% de su peso y prescindir de la insulina (en concreto, recuerda, el 9 de noviembre de 2009). Se trata de un programa de educación en autocuidados para que aquellas personas que padezcan enfermedades crónicas o que sean responsables de su cuidado, puedan conocer mejor su enfermedad, así como aquellos hábitos o conductas que les harían conseguir un mejor estado de salud. En corto: se trata de empoderar al paciente al respecto de su caso. Para ello se preparan talleres, jornadas y otras actividades entre pacientes o entre “iguales” que son dirigidos por cuidadores y diversos profesionales sanitarios.

Muestra de uno de tantos días del diario de Avelino

El caso es que, gracias a los cuidados, las enseñanzas y a la motivación del personal sanitario (de la enfermería y de la medicina) de los Centros de Salud La Paz de Cruces y Retuerto y del Hospital también de Cruces, Avelino fue mejorando y adaptando su tratamiento farmacólogico en virtud de los avances en sus analíticas cotidianas. Diarias y recurrentes, como es habitual en todos aquellos casos, como este, a la hora de controlar la glucemia, en especial si son pacientes en los que se aplica la insulinoterapia, como le pasaba a Avelino. Tal y como puedes imaginar, todos esos cambios en los estilos de vida se llevaron a cabo en materia de alimentación y de actividad física.

Te podría contar de palabra cómo se ha alimentado y se ha movido Avelino estos últimos años, pero es mejor que os lo cuente él mismo. ¿Cómo? pues consultando una de las cosas más asombrosas y dignas de alabanza de su proceso: su blog. Un recurso-proyecto-realidad que según me contó Avelino también nació a consecuencia del programa “El paciente activo” en base a los contactos recursos, aprendizajes y motivaciones a los que se accede en dicho programa.

El blog de Avelino: libre de insulina

El blog, no te lo pierdas es https://libredeinsulina.wordpress.com/ (os lo dejo así, para que no haya duda), y en él vas a encontrar toda esa energía de la que se nutre y que al mismo tiempo irradia Avelino, con el fin de hacer posible su admirable transformación. Hay varias cosas que destacan sobremanera en este rincón web, pero hay dos que me impactaron especialmente.

  • La primera, el mantener vivo, y con todo lujo de detalles, un diario dietético desde el mes de abril de 2015 hasta nuestros días. De esta forma, y ordenado mes a mes, Avelino ha ido colgando lo que ha comido en desayuno, comida y cena, todos los días. Y ojo, que eso no es todo, se ha tomado la molestia de hacerle una fotografía (a todo), ha calculado el valor energético de cada ingesta por separado y ha hallado igualmente los gramos de macronutrientes de estas (ya quisieran muchos dietistas-nutricionistas de hoy en día tener esa habilidad). Es francamente alucinante. Y además, cuelga un documento pdf al mes con todos los detalles de su alimentación (aquí el mes de noviembre de 2018… y así más de 5 años).
  • Y la segunda, el contrastar, ya no solo el registro diario de su actividad física (como con la alimentación), si no también las andadas diarias, mensuales y anuales que se calza el bueno de Avelino desde años atrás. De este particular solo se tienen los registros de 2018 y 2019. En ellos salen medias diarias que van desde los 16,8 kilómetros diarios que anduvo en agosto de 2019 a los casi 32 kilómetros (sí, también diarios y de media) en el mismo mes de 2018.

Registro de las andadas de Avelino en 2019

Con estas medias, todos los días, no es de extrañar que salgan kilometradas anuales casi astronómicas de en torno a los 9.000 o incluso 10.000 kilómetros andandos (imagino que más que los que muchas personas suman con sus coches o motos al año). En la conversación Avelino me trasladó que para alcanzar estas distancias diarias suele levantarse muy temprano, hace sus estiramientos, desayuna “fuerte” (tienes los ejemplo en su diario dietético) y camina cerca de 4 horas antes de comer. Luego, a media tarde y en compañía de su mujer, suele andar dos horas más. Y así todos los santos días. La media más habitual es de cerca de 23 km/día. Alucinante y encomiable.

La margarita de Avelino: más allá de “la dieta” y el ejercicio

El empuje de Avelino se pone de relieve más allá de los datos relativos a su alimentación y ejercicio (de por sí asombrosos). Y lo hace usando estrategias de comunicación francamente originales y generosas, como lo es la creación de mi margarita (la de Avelino, claro). La idea surgió a partir de la necesidad de encontrar una herramienta visual y rápida que, a modo de resumen o de ideario, contuviera todas las ideas básicas que Avelino ha ido aprendiendo en el programa “El paciente activo” (básicamente lo que a día de hoy se ha hecho tan popular bajo el término de infografía). El caso es que con la ayuda de una nieta que ha estudiado diseño gráfico, creó esa margarita que en sus 12 pétalos reúne los principales instrumentos e ideas que se trabajan en el programa. Estas son las 12 herramientas que utiliza Avelino para controlar su diabetes y mejorar su salud:

  • Alimentación de saludable
  • Ejercicios físicos y de relajación
  • Autocontrol de la medicación y la alimentación
  • Gestionar bien el stress y las emociones
  • Dormir bien mínimo 8 horas
  • Ser siempre positivo
  • El sacrificio siempre compensa
  • Mucha disciplina
  • Seguir los consejos médicos
  • Ser tú mismo
  • Comprensión con los que te ayudan
  • Nunca des un paso atrás

Os recomiendo muy vivamente pasaros por este ejemplo incomparable en la gestión de las enfermedades crónicas, y más en concreto de la diabetes tipo 2. Y más allá de lo comentado os paseéis, por sus post en los que da consejos, agradece la labor de terceros, sin olvidar esa “carta a mi madrastra la diabetes”.

No quiero despedirme sin hacer alusión a todos aquellos perfiles que a la menor mención del caso de Avelino en redes sociales y de la posibilidad que él mismo me brindó para poder entrevistarle, saltaron a la palestra para alabar su persona y ejemplo. Véanse aquí, aquí y aquí.

Vaya desde aquí mi homenaje para Avelino con el deseo de que su ejemplo llegue a ser eso que se conoce como “tendencia”… o tal y como se dice hoy en día #trendintopic. Afortunadamente ya hay quién se empieza a hacer eco de forma abierta de su caso, por ejemplo, al ponerlo como referente de paciente con diabetes en situación de confinamiento.

291 comentarios en “El caso Avelino: posiblemente el mejor paciente del mundo con diabetes tipo 2”

  1. Me ha encantado el ejemplo de Avelino, ya quisiéramos muchos tener la fuerza y la constancia que tiene el.
    Una vez más, la edad es una falacia y mas si estás convencido de ello. Avelino pudo haberse conformado con la medicación y el paseíllo a por el pan y no lo ha hecho. Creo que es un ejemplo de inspiración para mucha gente.
    Y ya luego ilustrar un diario para que si le quieres seguir de ejemplo puedas hacerlo… me quito el sombrero.
    Muchas gracias por darnos a conocer este caso

    1. Gracias Minerva… me encanta lo de conformarse con el “paseíllo a por el pan”. Gracias por tus interesantes apreciaciones. Abrazos!

  2. Soy Teo un compi monitor -Osakidetza de Avelino.Hemos salido al monte:como anda este hombre,estricto con los controles,siempre con esa aptitud”Avelinesca”de ayudar a “to pichi hi”,que lo he visto,como gestiona sus menus,ha diseñado sus propios platos,”nunca entra a saco”.Nada menos que Juan Ravenga lo ha focalizado.Admirable,sigue asi “Zorionak laguna”
    “

    1. Muchas gracias Teo por el feedback de primera mano y por tus apreciaciones. Un abrazo y enhorabuena como parte implicada en Osakidetza. Abrazos!

  3. Buenas tardes Minerva, es un placer poder leer tu comentario y te lo agradezco muchisimo.
    Los que de verdad merecen ser apoyados y homenajeados son: todos los profesionales de Osakidetza, el grupo de Paciente Activo – Paziente Bizia, la Fundación para la Diabetes, todo el grupo del Reto Camino Santiago, la Asociación de Diabetes Asvidia, la Fundación de Diabetes Cero, los compis de Barakaldo Martxan, Manuel Celá y Juan Revenga. Mención especial a mis primeros mentores y compañeros Tomás Mendez y Lorena Guerrero. Además, a cuantas buenas personas que me ayudais y animais cada día.
    Muchas gracias por vuestra esfuerzo y gran valía a todo@s.

  4. Buenas tardes Teo ,muchas gracias por tú gratitud pero sin la colaboracion tuya ,de todas las personas del grupo de Paciente Actvo Paciente Bizia y con todas las herramientas que me habeis enseñado a practicar a diaro , nada de este ” Regalo” habia sido posible .
    Un fuerte abrazo

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    Buena suerte amigos)

  248. Hola a todos!
    Soy Masha, tengo 32 años, vivo en Inglaterra, crío a 2 niños que van a la escuela)
    La escuela es bastante estresante, tanto para los niños como para los padres, y las lecciones constantes y la preparación para el examen en las materias especializadas me volvieron loco(
    Me puse nerviosa, dejé de dormir con mi esposo y comencé a tener un TIC nervioso, fue horrible…
    Es bueno que las novias aconsejaron encontrar sitios con soluciones y tratar de hacer lecciones en casa de acuerdo con su método.
    Por cierto, un buen sitio
    https://www.controlworks.ru/kontrolnaja-rabota-novomu-vremeni-7-klass/

    No hay anuncios, búsqueda conveniente y mucha información valiosa sobre el trabajo de control!
    Honestamente, comencé a dormir tranquilo, recuperé el sexo y la paz en la familia, ¡gracias a esos sitios donde puedes encontrar soluciones y dedicar más tiempo a tus asuntos favoritos!
    ¡Mucho éxito!

  249. ¡Hola!

    ??????? ???????? ???? ????? ??????, ????? ?????, ? ??? ? ???? ????? 2 ?????????, ? ???????? ????????????? ????? ??? ????? ??????????, ? ???? ????????? ??? ????? ??????? ?????? ? ???????, ? ?? ?????? ?????????? ? ????(
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    ? ??????, ??? ??? ?????? ????????, ????????? ?? ??? ?????!
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    ???? ??? ???? ??? ???????????? ??? ???????, ? ????????? ??? ????? ? ??????, ?????!

  250. Hola a todos!

    Quiero compartir una experiencia real, con la edad, mi poder sexual comenzó a disminuir, y finalmente llegó a un nivel deplorable(
    Incluso las chicas más bellas y jóvenes, no excitaron el nivel de energía necesario en mí…
    Fue terrible y comenzó la depresión, cuando un amigo dijo que era necesario Leer chistes y reír todos los días, y todo se arreglará gradualmente.
    Me recomendó este sitio
    https://www.kompotanekdot.ru/anekdoty-pro-tancy-jumor-i-tancy-interesnye-stati/

    Pensé que era una tontería, pero no había nada que hacer, ¡y comencé a reírme sistemáticamente y Leer todo sobre el humor!
    No lo creí, pero después de 2 semanas, mi potencia se volvió normal, ¡y pude regresar a las extensiones de amor y caminar con modelos!
    Gracias a la risa y las anécdotas, y sé saludable)

    Ya tengo 87 años, pero sigo siendo fuerte en la cama)

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  286. Hola a todos!

    ¿Has oído hablar de X-GPT Writer: un generador de contenido de palabras clave único basado en la red neuronal ChatGPT?
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    Pensé que era sólo una utilidad, era barato, un amigo dio un cupón de descuento 40%:
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    los detalles de dónde ingresarlo se indican en el sitio:
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    Comenzó a probar, profundizar, compró 50 cuentas de ChatGPT a precios bajos y se puso en marcha!
    Ahora fácilmente generar y ejecutar 3-4 nuevos sitios a la semana, Unique por lotes carpetas enteras e incluso crear imágenes,
    usando la red neuronal ChatGPT y x-GPT Writer.
    Vale la pena probar Amigos, hay una demostración, todo es gratis, no te arrepentirás)

    ¡Mucho éxito!

    ChatGPT ??? ??????????? ????????? ????????
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    ?????????? ??????? ? ??????????????? ?? ???? ChatGPT
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